A New set of specialists

My husband and I made our way to the hospital and waited for the head pediatrician to update us on the reason why Nathan was leaving the NICU at our current hospital and be transferred over to the Children's Hospital. It didn't take long before an entire team came and joined us. In a matter [...]

We are moving

It's my second day at the hospital and a hospital staff informs us that I've been discharged and we are expected to leave by noon. There had been no complications, my body was recuperating well so I'm expected to leave. But my baby is in the NICU, am I supposed to leave him? Yes, that's [...]

Meeting the specialists

I was not expecting this. The worst case scenario I had pictured was a c-section. Nothing prepared me for what was unfolding. I remember watching countless tutorials on what to pack in my hospital bag, how to create a birth plan and what to expect. But there were no tutorial or videos of the multiple [...]

My Birth Story

I've been avoiding writing this post for awhile now… It's been in the backburner for a few days.. I didn't want to write it. I didn't want to open this folder kept in the back of my mind. I wanted to skip to the next chapter but it wouldn't be right. Because its part of [...]

How it all Begin..

After a healthy pregnancy with no complications, the moment I had been waiting for finally arrived. I would finally get to meet Nathaniel for the first time.Little did I know that my world was about to be turned upside down with these 3 words: Peroxisome biogenesis disorders. The prognostic was not favorable and my son's [...]

Peroxisomal Biogenesis Disorder

Peroxisomal disorder, what is it?It is a very complex disorder, until today, I am still researching and I am still trying to understand. Thanks to google, I was able to find an easy breakdown.Peroxisomal disorders are a group of hereditary metabolic disorders that occur when peroxisomes are missing or do not function correctly in the [...]